update

Its been a while since I posted but I have been thru the ringer with testing. The retroperitoneal mass is a lymphoma, low grade, and very slow groing. The doc has given me three options for treatment. I will get to that later.

I had a second opinion from mayo and will be seeing a hemotologist there for further consult as my most recent cat scan shows I have a shadow on my heart that all the docs think is a myxoma( non-cancerous tumor) in my left upper chamber of my heart.Docs say this can act like a blood clot but since I have no symptoms will monitor while I have further tests. Only treatment is surgical removal. 

I don't know why I'm seeing a hemotologist but will find out Thursday.

As for treatment for lymphoma, radiation therapy is recommended but on hold while I get tested for other tumor.

Anyway everything progressing slowly but progressing and all docs working together. Will see what happens.

Danean threw a punch at your cancer.
Danean sent you a prayer.
Danean sent you a hug.
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Wow Mike, you HAVE been through the ringer. But I will ad, it's a good thing you were completely tested. The heart issue thankfully is not cancerous but non-the-less a pretty serious surgery. I don't know why you need to see a hemotologist either but there must be a good reason. I would encourage you to ask questions until you get an answer you can understand. It's very important for you to understand the path to recovery they are recommending. You sound like a compliant patient, the kind doctors like to work with. Thankfully the lymphoma is low grade and treatable. I guess life is not boring and you certainly have a couple of huge challenges. I'm glad you decided to share it with us and be part of this community of support.


Glad your doctors are working together, you need that for sure. It's always easier when you have a loving spouse by your side through this. You're strong and no stranger to treatment. You can do this.
Mike, Danean like this comment
Hi Mike! You need to see a hemo guy because Lymphoma is, in essence a blood cancer, along with leukemia. Hence the blood doctor to monitor that area. Lymphoma is very curable now, thanks to rituxin and non-heroic doses of radiation. As far as the heart, I know nothing of that but as long as they could fix it, don't worry about it. Your NHL may be the follicular type which is slow growing and pretty indolent too. My Gram was dx'ed with it at 93! Never tx'ed for it and passed peacefully at 98 of advanced age. Keep us posted.🙏🏻
Mike likes this comment
Well, I like the "slow growing part"- I hope you get some treatments lined up soon!
Stay Strong!
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Vital Info

Posts

June 26, 2012

Florida 34668

November 16, 1946

Cancer Info

Nose Cancer

March 2, 2012

Stage 3

3.1 - 4.0 cm

Grade 3

Yes

Helplessness

To keep fighting

don't smother me with kindness treat me normally

none

none

left neck lymph nodes

Help Claire as much as possible

Florida Cancer Affiliates

keep a positive attitude and your sense of humor

support groups are wonderful for learning the different sides of cancer

only symptom was swelling of right side of nose

complete removal of nose

Radiation side effects included loss of taste, trouble chewing, sore gums and teeth

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